Clinical trial · Observational
LRG GIST Patient Registry
Life Raft Group GIST Registry Protocol
NCT07697248CI-TRIAL-00117669recruitingClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The Life Raft Group (LRG) Patient Registry is a structured database that collects comprehensive information about individuals diagnosed with GIST. The purpose of this registry is to facilitate research, improve understanding of the disease, track patient outcomes, and ultimately enhance patient care.
Conditions
Conditions (3)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Gastrointestinal Stromal Tumor (GIST) | Gastrointestinal Stromal Tumor | CURATED_BROADER | 0.80 |
| GIST | Gastrointestinal Stromal Tumor | ALIAS | 0.90 |
| GIST - Gastrointestinal Stromal Tumor | — | UNRESOLVED | — |
Interventions
Interventions (0)
Data not yet available
No intervention recorded.
Design
Arms and outcomes
Arms (0)
[]Primary outcomes (5)
- measure
- Overall survival
- timeFrame
- From the date of registry enrollment until death from any cause, assessed through follow-up for up to 25 years.
- description
- Time from registry enrollment until death from any cause.
- measure
- Progression Free Survival
- timeFrame
- From the date of registry enrollment until the first documented disease progression or death from any cause, whichever occurs first, assessed through follow-up for up to 25 years.
- description
- Time from registry enrollment until documented disease progression or death, whichever occurs first.
- measure
- Recurrence Free Survival
- timeFrame
- From the date of complete surgical resection until the first documented recurrence of GIST or death from any cause, whichever occurs first, assessed through follow-up for up to 25 years.
- description
- Time from registry enrollment (or from complete surgical resection, if that is the clinically relevant starting point) until the first documented recurrence of GIST or death from any cause, whichever occurs first.
Eligibility
Eligibility (as posted)
- Sex
- All
Show eligibility criteria text
Inclusion Criteria: 1. Gastrointestinal Stromal Tumor diagnosis 2. Provide written and informed consent Exclusion Criteria: \-
References
Publications (0)
Data not yet available
No reference posted for this study.