Clinical trial · Observational
Improving Engagement From Underserved Communities With Prostate Cancer Genetics Services
Improving the Engagement of Underserved Communities With the Prostate Cancer Genetics Service: Identifying Barriers & Facilitators and Developing Supportive Resources Using a Co-production and Collaborative Approach
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
Earlier work explored barriers and facilitators to accessing prostate cancer screening, particularly in underserved communities, and provided valuable insights to build upon. This study will explore perspectives on how genetic risk for prostate cancer is explained and understood through in-depth interviews with members of underserved communities. Findings from this work, alongside earlier results, will be used to co-design clear and accessible digital educational resources in collaboration with community members and relevant charities. Participation in cancer screening programmes in the UK varies, with differences linked to socioeconomic status, ethnicity and health literacy. Similar inequalities are seen in access to prostate cancer genetics services, indicating a need for improved engagement. Successful integration of genetics into prostate cancer care requires clear and inclusive information about genetic testing processes, possible outcomes and interpretation of results. Currently, there are limited resources explaining genetic risk for prostate cancer in an accessible way. Co-production with representatives from underserved communities will ensure that educational materials are understandable, relevant and acceptable to all.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Prostate Cancer | Malignant Prostate Neoplasm | CURATED_EXACT | 0.92 |
Interventions
Interventions (2)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Semi-structured interviews and focus groups | Other | — | UNRESOLVED |
| Surveys | Other | — | UNRESOLVED |
Design
Arms and outcomes
Arms (1)
- label
- Semi-structured interview participants
- description
- Up to 60 participants for semi-structured interviews, 20 from each of the following underserved groups in prostate cancer screening; Black African and Black Caribbean, transgender and non-binary with a prostate, reduced access to healthcare.
- interventionNames
- Other: Surveys
- Other: Semi-structured interviews and focus groups
Primary outcomes (3)
- measure
- Evaluation of educational materials, demonstrating that users have an increase in understanding or prostate cancer risk and symptoms as well as genetic risk.
- timeFrame
- February 2026 to August 2026
- description
- Using surveys (before and after use of resources) and interviews to measure improvement in understanding in individuals without experience of prostate cancer.
- measure
- Increased representation from underserved groups in the referrals to our genetic research studies.
- timeFrame
Eligibility
Eligibility (as posted)
- Sex
- Male
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: 1. Men and people with prostates age 18 and above 2. Those who belong to the three underserved groups; Black African and Black Caribbean Ancestry, transgender and non-binary people with a prostate and those with reduced access to healthcare 3. We allow intersectionality within reason and will narratively describe any instances of these in the writeup of findings 4. Those who are able to freely consent to inclusion 5. Individuals with and without a lived experience of prostate cancer Exclusion Criteria: 1. To avoid exhaustion, we will only allow participation in two interview or focus groups per individual for the entirety of the study 2. Those without capacity to consent to interview (capacity is assumed unless there is good reason to believe otherwise)
References
Publications (0)
Data not yet available