Clinical trial · Observational
Patient and Caregiver Priorities in Neuro-oncology Care
Patient and Caregiver Priorities in Neuro-Oncology Care
NCT06676306CI-TRIAL-00107079completedClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
This study is being done to identify patient and caregiver burdens regarding their experience with diagnosis and treatment of CNS tumors. These results will help doctors find areas where patients and caregivers may need more support.
Conditions
Conditions (2)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Malignant Central Nervous System Neoplasm | Malignant Central Nervous System Neoplasm | ONTOLOGY_EXACT | 0.90 |
| Metastatic Malignant Neoplasm in the Central Nervous System | Central Nervous System Neoplasm | PROBABILISTIC | 0.70 |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Non-Interventional Study | Other | — | UNRESOLVED |
Design
Arms and outcomes
Arms (1)
- label
- Observational
- description
- Patients and their caregivers participate in interviews on study. Patients also have their medical records reviewed on study.
- interventionNames
- Other: Non-Interventional Study
Primary outcomes (5)
- measure
- Patient experience
- timeFrame
- Up to 6 months
- description
- Participant and caregiver interviews will be analyzed qualitatively and reported descriptively. Interviews will be analyzed to describe the patient experience related to primary or metastatic central nervous system (CNS) tumors.
- measure
- Symptom burden related to primary or metastatic central nervous system tumors
- timeFrame
- Up to 6 months
- description
- Participant and caregiver interviews will be analyzed qualitatively and reported descriptively. Interviews will be analyzed to characterize the symptom burden related to primary or metastatic central nervous system (CNS) tumors.
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria:
* \* Age ≥ 18 years.
* Diagnosis of primary or metastatic CNS tumor with a primary caregiver, should patient wish to involve one.
* Willing and able to participate in a semi-structured interview lasting approximately 60 minutes. Dyad interviews conducted for participants who elect to involve a caregiver.
* Willing and able to participate in a single follow-up interview. Dyad follow up interviews conducted for participants who elect to involve a caregiver.
Exclusion Criteria:
* \* Uncontrolled and/or intercurrent illness which limits participation in study interview.
* Vulnerable populations: pregnant or nursing persons, prisoners, or persons lacking capacity for understanding.
* Unable to read and speak English.
* Note: English does not need to be primary language.References
Publications (0)
Data not yet available
No reference posted for this study.