Clinical trial · Observational
Decision-making Preferences and Its Related Factors on Parents With Children Having Cancer
NCT06618066CI-TRIAL-00081190completedClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
A cross-sectional correlational study was conducted in the pediatric hematology-oncology ward and outpatient clinic of a medical center in southern Taiwan. Participants included fathers or mothers of children diagnosed with cancer aged between 20 and 65 years. Structured questionnaires were used, including FACES IV, JCS, and CPS-P. This study aims to explore the current status of family cohesion, coping behaviors, and decision making preferences among parents of children with cancer, and to identify factors influencing decision making preferences.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Pediatric Cancer | Childhood Malignant Neoplasm | ALIAS | 0.90 |
Interventions
Interventions (0)
Data not yet available
No intervention recorded.
Design
Arms and outcomes
Arms (0)
[]Primary outcomes (3)
- measure
- Exploring the current state of decision-making preferences among parents of children with cancer using the Control Preferences Scale for Pediatrics (CPS-P)
- timeFrame
- Single point in time: At enrollment
- description
- The CPS-P is a method for assessing individual preferences in medical decision-making roles, consisting of five options that represent five different roles.(A) I prefer to make the final decision about which treatment my child will receive, (B) I prefer to make the final selection of my child's treatment after seriously considering my doctor's opinion, (C) I prefer that my child's doctor and I share responsibility for deciding which treatment is best for my child, (D) I prefer that my doctor makes the final decision about which treatment will be used, but seriously considers my opinion, (E) I prefer to leave all decisions regarding my child's treatment to my doctor. The five responses are classified into three categories representing active(A and B), collaborative (C) and passive (D and E) decision-making preference.
- measure
- Exploring the current state of family cohesion among parents of children with cancer using the Family Adaptability and Cohesion Evaluation Scale (FACES)
- timeFrame
- Single point in time: At enrollment
- description
- The evaluation of family functioning involves: (1) Balanced Scales: Cohesion and Flexibility, (2) Unbalanced Scales: Disengaged, Enmeshed, Rigid, and Chaotic, (3) Family Communication, and (4) Family Satisfaction. The instrument consists of eight subscales with a total of 62 items, rated on a five-point Likert scale. The Family Cohesion and Flexibility scales include 42 items (0-42), divided into six sections with scores ranging from 7 to 35 per section. The Family Communication scale, which assesses positive communication and openness, contains 10 items (43-52) with scores ranging from 10 to 50. The Family Satisfaction scale, measuring satisfaction with cohesion, flexibility, and communication, also has 10 items (53-62), scoring from 10 to 50. Higher scores on Cohesion and Flexibility suggest a healthier family system; higher scores on Disengaged, Enmeshed, Rigid, and Chaotic indicate dysfunction; higher scores on Communication and Satisfaction denote more positive perceptions.
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 20 Years
- Maximum age
- 65 Years
Show eligibility criteria text
Inclusion Criteria: 1. Parents aged between 20 and 65 years whose child has been diagnosed with pediatric cancer by a physician. 2. Individuals who understand Mandarin or Taiwanese Hokkien and are able to complete the questionnaire. 3. Individuals who consent to participate in the study after being informed of the research purpose. Exclusion Criteria: (1)Individuals diagnosed with a mental illness by a physician.
References
Publications (3)
- BACKGROUNDOlson D. FACES IV and the Circumplex Model: validation study. J Marital Fam Ther. 2011 Jan;37(1):64-80. doi: 10.1111/j.1752-0606.2009.00175.x. PMID 21198689
- BACKGROUNDDegner LF, Sloan JA, Venkatesh P. The Control Preferences Scale. Can J Nurs Res. 1997 Fall;29(3):21-43. PMID 9505581
- BACKGROUNDJalowiec A, Murphy SP, Powers MJ. Psychometric assessment of the Jalowiec Coping Scale. Nurs Res. 1984 May-Jun;33(3):157-61. PMID 6563533