Clinical trial · Observational
Myasthenia Gravis Foundation of America Global MG Patient Registry
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.
Conditions
Conditions (13)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Myasthaenia Gravis | — | UNRESOLVED | — |
| Myasthenia | — | UNRESOLVED | — |
| Myasthenia Gravis | — | UNRESOLVED | — |
| Myasthenia Gravis, Adult Form | — | UNRESOLVED | — |
| Myasthenia Gravis Associated with Thymoma | — | UNRESOLVED | — |
| Myasthenia Gravis Crisis | — | UNRESOLVED | — |
| Myasthenia Gravis Exacerbations | — | UNRESOLVED | — |
| Myasthenia Gravis Generalised | — | UNRESOLVED | — |
| Myasthenia Gravis, Generalized | — | UNRESOLVED | — |
| Myasthenia Gravis, MuSK | — | UNRESOLVED | — |
| Myasthenia Gravis, Ocular | — |
Interventions
Interventions (0)
Data not yet available
Design
Arms and outcomes
Arms (1)
- label
- Participants
- description
- Those with Myasthenia Gravis
Primary outcomes (1)
- measure
- Diagnosis of MG
- timeFrame
- At enrollment
- description
- Whether the patient has a confirmed MG diagnosis.
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * age over 18 * positive MG diagnosis Exclusion Criteria: * age under 18 * misdiagnosed with MG
References
Publications (0)
Data not yet available