Clinical trial · Observational
Family Caregiver Online Survey (Dementia and Swallowing Difficulties)
Influence of Swallowing Impairment on Burden Among Caregivers of Persons With Alzheimer's Disease and Related Dementias
NCT06471660CI-TRIAL-00099196completedClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia. The goal of this research is to explore the needs of family caregivers, specifically when it comes to managing swallowing difficulties (dysphagia).
Conditions
Conditions (12)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Dementia | — | UNRESOLVED | — |
| Dementia Alzheimers | — | UNRESOLVED | — |
| Dementia Frontal | — | UNRESOLVED | — |
| Dementia Frontotemporal | — | UNRESOLVED | — |
| Dementia, Mild | — | UNRESOLVED | — |
| Dementia, Mixed | — | UNRESOLVED | — |
| Dementia Moderate | — | UNRESOLVED | — |
| Dementia Severe | — | UNRESOLVED | — |
| Dementia, Vascular | — | UNRESOLVED | — |
| Dementia With Lewy Bodies | — | UNRESOLVED | — |
| Dysphagia | — | UNRESOLVED | — |
Interventions
Interventions (0)
Data not yet available
No intervention recorded.
Design
Arms and outcomes
Arms (0)
[]Primary outcomes (11)
- measure
- Demographic Information
- timeFrame
- Baseline
- description
- Demographic Questionnaire
- measure
- Eight-item Informant Interview to Differentiate Aging and Dementia (AD8)
- timeFrame
- Baseline
- description
- The AD8 is a screening test that is sensitive to detecting early cognitive changes associated with dementia. AD8 is a scale from 0-8, with higher scores signifying more severe cognitive decline.
- measure
- Global Deterioration Scale (GDS)
- timeFrame
- Baseline
- description
- The Global Deterioration Scale (GDS) provides an overview of the stages of cognitive function for those suffering from a primary degenerative dementia such as Alzheimer's disease. GDS is a scale from 0-7, with higher scores signifying more severe cognitive decline.
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * Be a caregiver for a family member (or chosen family member) with dementia * Have been caregiving for at least 2 months * Live at home with the care recipient * Not be paid for the care provided * Be over the age of 18 * Live in the US Exclusion Criteria: * Not be a caregiver for a family member (or chosen family member) with dementia * Have been caregiving for less than 2 months * Not live at home with the care recipient * Be paid for the care provided * Be under the age of 18 * Live outside in the US
References
Publications (0)
Data not yet available
No reference posted for this study.