Clinical trial · Observational
Synovial Sarcoma Registry / Biospecimen Repository
Synovial Sarcoma Registry and Biospecimen Repository
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Synovial Sarcoma | Synovial Sarcoma | ONTOLOGY_EXACT | 0.90 |
Interventions
Interventions (0)
Data not yet available
Design
Arms and outcomes
Arms (0)
[]Primary outcomes (1)
- measure
- Number of patients with synovial sarcoma
- timeFrame
- Up to 10 years
- description
- Number of patients with synovial sarcoma
Eligibility
Eligibility (as posted)
- Sex
- All
Show eligibility criteria text
Inclusion Criteria: 1. Males or females of any age 2. Reported diagnosis of synovial sarcoma 3. Informed consent from subject (aged ≥18 years) or parent/guardian Exclusion Criteria: 1. Individuals with sarcomas that do not fit the definition of those considered for this registry 2. Individuals who are unwilling to participate 3. Individuals who are unwilling or unable to provide written consent
References
Publications (0)
Data not yet available