Clinical trial · Interventional
Web-based Support for Family Caregivers of Patients With Advanced Cancer
Web-based Support to Promote Preparedness for Caregiving Among Family Caregivers of Patients With Advanced Cancer
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
For family caregivers of patients with advanced cancer, preparedness for caregiving is crucial for maintaining health and quality of life both during care and after the death of the patient. This project contributes to earlier research funded by the Swedish Cancer Society, about an intervention that was delivered by a multi-professional team and proved to be successful in promoting preparedness. However, such interventions are often costly and logistically challenging. In addition, the Covid-19 pandemic has further significantly raised the need for digital alternatives in healthcare. As a possible solution, an evidence-based intervention, narstaende.se, has been developed consisting of recorded videos of conversations between clinicians and family caregivers (actors), linked to informational texts and a moderated chat forum. The intervention was pilot tested during 2020 and 2021, exploring feasibility, content and family caregivers' experiences. As preliminary results are promising, the intervention is taken one step further and tested as a web-based intervention in a larger scale.
Conditions
Conditions (4)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Cancer Metastatic | — | UNRESOLVED | — |
| Chronic Illness | — | UNRESOLVED | — |
| End of Life | — | UNRESOLVED | — |
| Family | — | UNRESOLVED | — |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Narstaende.se | Other | — | UNRESOLVED |
Design
Arms and outcomes
Arms (2)
- type
- EXPERIMENTAL
- label
- Intervention
- description
- Access to web-site
- interventionNames
- Other: Narstaende.se
- type
- NO_INTERVENTION
- label
- Control
- description
- Standard care
Primary outcomes (1)
- measure
- Change in Preparedness for caregiving
- timeFrame
- At baseline (before intervention), change from baseline after 4-6 weeks (follow-up 1) and after 8-10 weeks (follow-up 2)
- description
- Preparedness for caregiving scale (PCS)
Secondary outcomes (5)
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * Being a family caregiver, over 18 years of age, to a person with life-threatening illness cared for in specialized home care. Exclusion Criteria: * Not being able to communicate in Swedish
References
Publications (2)
- DERIVEDDoveson S, Wallin V, Kreicbergs U, Alvariza A. Expectations and motives for nominating a family caregiver to partake in a web-based psychoeducational intervention: perspectives of patients with advanced illness in palliative care. Support Care Cancer. 2026 Aug 20;34(9):880. doi: 10.1007/s00520-026-11105-y. PMID 42624933
- DERIVEDBauman C, Wallin V, Doveson S, Furst P, Hudson P, Kreicbergs U, Alvariza A. The family caregiver-targeted web-based intervention "narstaende.se" facilitated everyday life for couples facing life-threatening illness: A qualitative study. Palliat Med. 2025 May;39(5):574-583. doi: 10.1177/02692163251327893. Epub 2025 Apr 12. PMID 40219770