Clinical trial · Observational
Study to Identify and Measure the Values and Palliative Care Pref. of Hindu Patients and Their Caregivers
A Prospective Study to Identify and Measure the Cultural Values and Palliative Care Preferences of Hindu Patients With Cancer and Their Caregivers
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Why stopped (as posted): Sponsor Investigator transferred from institution
Summary
Brief summary (as posted)
Historically, palliative care in the US has been rooted in the cultural values of a Caucasian, Christian middle class. Greater understanding of how culture influences the delivery of palliative care to minority patients is needed to achieve health equity. The purpose of this study is to learn more about the cultural values (Hindu customs and beliefs) and palliative care (specialized care for people living with a serious illness) preferences of the Hindu community. To the study team's knowledge, there has not been another study that has used a research approach to help better understand and measure the cultural values and palliative care preferences of Hindu participants with cancer and their caregivers.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Neoplasms | Neoplasm | ONTOLOGY_EXACT | 0.90 |
Interventions
Interventions (3)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Developed survey completion | Other | — | UNRESOLVED |
| Semi-structured interview | Other | — | UNRESOLVED |
| Systems of Belief Inventory (SBI-15R) | Other | — | UNRESOLVED |
Design
Arms and outcomes
Arms (2)
- label
- Focus Group
- description
- A total of 16 participants, including patients and caregivers, will be enrolled for 2 focus groups (group of 8 patients with cancer and group of 8 caregivers).
- interventionNames
- Other: Semi-structured interview
- Other: Systems of Belief Inventory (SBI-15R)
- label
- Cognitive Interviews Group
- description
- A total of up to 30 participants will be enrolled in this cohort, and up to 3 rounds of cognitive interviews will be conducted. This cohort of participants will be enrolled after survey development based on the themes identified from the focus group analyses.
- interventionNames
- Other: Developed survey completion
- Other: Systems of Belief Inventory (SBI-15R)
Primary outcomes (2)
- measure
- To identify the cultural values and palliative care preferences of Hindu patients with cancer and caregivers in Charlotte and surrounding areas.
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: 1. Verbal informed consent by the patient or caregiver 2. Age ≥ 18 years at the time of consent 3. Participants must be a cancer patient or caregiver and/or: * Self-identified Hindu * Cancer patients must have received most of their cancer care in Charlotte and surrounding areas within the past 5 years from enrollment * Caregivers must be caring for a patient who meets the above criteria and is too ill to participate or cared for a cancer patient who met the above criteria but died within the past 5 years from enrollment 4. Ability to read, speak, and understand English 5. As determined by the enrolling investigator, the ability of the participant to understand and comply with study procedures for the entire length of the study Exclusion Criteria: 1\. Lack of access to the technology required to attend virtual meetings and complete study surveys electronically (e.g., internet in home setting)
References
Publications (0)
Data not yet available