Clinical trial · Observational
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
Registry for Patients With Desmoplastic Small Round Cell Tumor
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Desmoplastic Small Round Cell Tumor | Desmoplastic Small Round Cell Tumor | ONTOLOGY_EXACT | 0.90 |
Interventions
Interventions (0)
Data not yet available
Design
Arms and outcomes
Arms (1)
- label
- Desmoplastic small round cell tumor (DSRCT)
- description
- Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT
Primary outcomes (1)
- measure
- Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
- timeFrame
- 7 years
- description
- The aim of this study is the collection of data.
Eligibility
Eligibility (as posted)
- Sex
- All
Show eligibility criteria text
Inclusion Criteria: * Participants must have a diagnosis of desmoplastic small round cell tumor * Participants may be of any age as long as the appropriate consent and assent may be obtained * Willing to provide historical and longitudinal clinical data Exclusion Criteria: * Participant unwilling to provide consent or share historical and longitudinal clinical data
References
Publications (0)
Data not yet available