Clinical trial · Observational
Aftercare of Childhood Cancer Survivors in Switzerland
Aftercare of Childhood Cancer Survivors in Switzerland - the ACCS Switzerland Project
NCT04284189CI-TRIAL-00060374ACCSrecruitingClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.
Conditions
Conditions (3)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Childhood Cancer | Childhood Malignant Neoplasm | ALIAS | 0.90 |
| Survivorship | — | UNRESOLVED | — |
| Transition | — | UNRESOLVED | — |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Transition model | Other | — | UNRESOLVED |
Design
Arms and outcomes
Arms (0)
[]Primary outcomes (4)
- measure
- Cancer Worry as part of transition readiness
- timeFrame
- Change from baseline to 3 month and 15 month
- description
- Assessment via validated "Cancer Worry Scale"
- measure
- Self-management as part of transition readiness
- timeFrame
- Change from baseline to 3 month and 15 month
- description
- Assessment via validated "Self-Management Skill Scale"
- measure
- Evaluation of needs for ongoing care as part of transition readiness
- timeFrame
- Change from baseline to 3 month and 15 month
- description
- Assessment via validated "Scale for ongoing Care"
- measure
- Evaluation of expectation for transition as part of transition readiness
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 16 Years
Show eligibility criteria text
Inclusion Criteria: * 5-year survivor of childhood cancer * Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH) * Age at diagnosis \<18 years * Age at study ≥16 years * At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition). * Written informed consent Exclusion Criteria: * Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma) * \<5 years after therapy of a relapse or palliative situation * Severe cognitive impairment, which makes it impossible to complete the questionnaire independently * Insufficient knowledge of the German language * Informed consent form not signed
References
Publications (2)
- DERIVEDOtth M, Kroiss-Benninger S, Scheinemann K. Aftercare of Childhood Cancer Survivors in Switzerland-The General Practitioner Model. J Adolesc Young Adult Oncol. 2025 Feb;14(1):53-61. doi: 10.1089/jayao.2024.0059. Epub 2024 Aug 12. PMID 39133122
- DERIVEDDenzler S, Otth M, Scheinemann K. Aftercare of Childhood Cancer Survivors in Switzerland: Protocol for a Prospective Multicenter Observational Study. JMIR Res Protoc. 2020 Aug 26;9(8):e18898. doi: 10.2196/18898. PMID 32845247