Clinical trial · Observational
Evaluation of the Adhesion to the GENEPY Network
Evaluation of the Adhesion to the Network of Care of People at Genetic Risk of Cancer in Midi-Pyrénées (GENEPY)
NCT03979612CI-TRIAL-00038991GENEPYunknownClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
In order to best meet the needs of all those affected by the genetic risk of cancer in our region, it is important to identify the factors likely to influence the course leading to the GENEPY surveillance network. The aim of this study is to evaluatie the adhesion to the network of care of people at genetic risk of cancer in Midi-Pyrénées (GENEPY).
Conditions
Conditions (3)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Hereditary Breast and Ovarian Cancer | — | UNRESOLVED | — |
| Hereditary Cancer Syndrome | — | UNRESOLVED | — |
| Hereditary Colorectal Endometrial Cancer Syndrome | — | UNRESOLVED | — |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| inclusion of subjects in the GENEPY network | Genetic | — | UNRESOLVED |
Design
Arms and outcomes
Arms (0)
[]Primary outcomes (6)
- measure
- Adhesion to the GENEPY network
- timeFrame
- 6 months
- description
- Network membership rate : comparison between the number of relatives who received the invitation and the number of them who joined the network.
- measure
- Age of relatives
- timeFrame
- 1 day
- description
- Age of the relative of the patient who answered the questionnaire
- measure
- Sex of relatives
- timeFrame
- 1 day
- description
- sex of the relative of the patient who answered the questionnaire
- measure
- Place of residence of the relatives
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * people with an identified mutation, predisposing to tumors of the breast / ovary or colon / rectum * people resident in the Midi-Pyrénées region Exclusion Criteria: * people under 18
References
Publications (2)
- RESULTEisinger F, Bressac B, Castaigne D, Cottu PH, Lansac J, Lefranc JP, Lesur A, Nogues C, Pierret J, Puy-Pernias S, Sobol H, Tardivon A, Tristant H, Villet R. [Identification and management of hereditary breast-ovarian cancers (2004 update)]. Pathol Biol (Paris). 2006 May;54(4):230-50. doi: 10.1016/j.patbio.2006.02.002. Epub 2006 May 2. French. PMID 16632260
- RESULTLandsbergen K, Verhaak C, Kraaimaat F, Hoogerbrugge N. Genetic uptake in BRCA-mutation families is related to emotional and behavioral communication characteristics of index patients. Fam Cancer. 2005;4(2):115-9. doi: 10.1007/s10689-004-7991-2. PMID 15951961