Clinical trial · Observational
The Patient's Journey - the Time to Final Diagnosis in Patients With SiNET
The Patient's Journey - Assessing the Time to Final Diagnosis in Patients With Neuroendocrine Tumors (NET) in Western Sweden
NCT03840720CI-TRIAL-00044842completedClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
"The patient's journey" is an interview based study assessing the patients' experience from the first symptoms to a final diagnosis focusing on patients with small intestinal neuroendocrine tumors.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Neuroendocrine Tumors | Neuroendocrine Tumor | ONTOLOGY_EXACT | 0.90 |
Interventions
Interventions (0)
Data not yet available
No intervention recorded.
Design
Arms and outcomes
Arms (0)
[]Primary outcomes (3)
- measure
- Initial symptoms
- timeFrame
- October 2019
- description
- Mapping of patients initial symptoms and their time points through indepths interviews by design thinking methodology
- measure
- Health care actions
- timeFrame
- October 2019
- description
- Mapping of corresponding health care actions and their time points regarding the investigations of symptoms
- measure
- Reasons for a delayed diagnosis
- timeFrame
- October 2019
- description
- Mapping of herdles and delays in reaching a final diagnosis through design thinking methodology analysing the patients symptoms and the corresponding Health care actions
Secondary outcomes (1)
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * Patients living in Western Sweden * \> 18 years of age * Performance status 0-3 * Expected remaining survival of \> 6 months * Diagnosed with a small intestinal neuroendocrine tumor during 2016-2018 Exclusion Criteria: * Not able to read and/or understand Swedish language * Dementia/memory loss * Performance status \>3
References
Publications (0)
Data not yet available
No reference posted for this study.