Clinical trial · Observational
Personalized Experiences to Inform Improved Communication for Minorities With Life Limiting Illness
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The purpose of this research is to develop patient-centered palliative care interventions to improve patient-provider communication and Quality of Life (QoL) of ethnic and racial minority patients living with life-limiting illnesses. Eliciting personal experiences is an effective way for patients to communicate their cultural values and beliefs. This study will assess how to integrate the patients' personal experience narratives into the electronic health record (EHR). The primary hypothesis is that the implementation of a patient-centered intervention to elicit personal experiences that are included in the EHR will improve patient-provider communication and patients' QoL.
Conditions
Conditions (3)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Cancer | Malignant Neoplasm | ALIAS | 0.90 |
| COPD | — | UNRESOLVED | — |
| Heart Failure | — | UNRESOLVED | — |
Interventions
Interventions (2)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Storytelling Intervention for Nurse Participants | Behavioral | — | UNRESOLVED |
| Storytelling Intervention for Patient Participants | Behavioral | — | UNRESOLVED |
Design
Arms and outcomes
Arms (2)
- label
- Inpatient Participants
- description
- Patients admitted to University of Colorado Hospital with at least one of the following diagnoses: * Heart Failure * COPD * Cancer
- interventionNames
- Behavioral: Storytelling Intervention for Patient Participants
- label
- Nurse Participants
- description
- Bedside nurses who provide care at the inpatient level for the following diseases: * Heart Failure * COPD * Cancer
- interventionNames
- Behavioral: Storytelling Intervention for Nurse Participants
Primary outcomes (1)
- measure
- Number of Completed Exit Interviews From Patients on Feasibility of Their Use of Their Narrative Integrated Into EHR
- timeFrame
- 1-2 weeks
- description
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: Patients * 18 years of age or older * able to read English * capable of giving informed consent * self-identifying as part of a racial or ethnic minority * diagnosed with at least one LLI. The operational definition of LLI eligible for this study includes the following diagnoses: 1. metastatic solid cancer or inoperable lung cancer; 2. COPD with FEV1 values \< 35% predicted or oxygen dependence; 3. New York Heart Association Class III or IV heart failure (CHF). Inclusion criteria: Nurse * 18 years of age or older * Confirm verbally that they were involved in the care of a patient who is participating in the storytelling intervention
References
Publications (1)
- DERIVEDCoats H, Meek PM, Schilling LM, Akard TF, Doorenbos AZ. "Connection": The Integration of a Person-Centered Narrative Intervention into the Electronic Health Record: An Implementation Study. J Palliat Med. 2020 Jun;23(6):785-791. doi: 10.1089/jpm.2019.0376. Epub 2020 Jan 6. PMID 31905039