Clinical trial · Observational
Amish/Mennonite Research Contact Registry
Research Contact Registry for Members of the Amish and Mennonite Communities
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The purpose of this registry is to find members of the Plain Community who are interested in participating in future medical research studies. Having a registry makes it easier to contact and offer study participation to individuals who are appropriate for a new research study based on their own and their family medical history. Studies will focus on increasing knowledge about disorders affecting those who are Amish and Mennonite.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| All | Acute Lymphoblastic Leukemia | ALIAS | 0.90 |
Interventions
Interventions (0)
Data not yet available
Design
Arms and outcomes
Arms (1)
- label
- Amish and Mennonite
- description
- * Agree to allow access to past, current, and future medical records * Provide a detailed family health history * Provide contact information that may be used for future approach regarding research studies
Primary outcomes (1)
- measure
- Accumulation and clinical definition of a patient population who are willing to participate in future research studies for which they are eligible.
- timeFrame
- This registry is intended to be an ongoing resource for recruitment into future research studies and will be maintained up to 14 years.
- description
- This research registry is intended to allow for identification of patients from the Plain Communities who are willing to participate in medical research. Eligibility for each future study will likely cary and patients will be selected and contacted with their permission, by dint of having consented to this registry, about the option of participating in a new research study.
Eligibility
Eligibility (as posted)
- Sex
- All
Show eligibility criteria text
Inclusion Criteria: * Amish and Mennonite men and women age 18 or older * Amish and Mennonite children with the permission of a parent Exclusion Criteria: * Amish and Mennonite men and woman age 18 or older who do not speak English * Those who are not Amish or Mennonite
References
Publications (0)
Data not yet available