Clinical trial · Observational
French National Registry of Rare Peritoneal Surface Malignancies
French National Registry of Rare Peritoneal Surface Malignancies (RENAPE Registry)
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patients in France. In order to better understand the characteristics of rare peritoneal surface malignancies and to evaluate treatment strategies, the RENAPE registry aims at the collection of data from patients presenting with a rare peritoneal surface malignancy in France. Data will be entered prospectively in a specifically designed and secured web database. All RENAPE's centres and physicians are invited to register patients with a rare peritoneal surface malignancy diagnosis and to participate to the registry. Data will be evaluated within regular time frames, focusing on types of rare peritoneal surface malignancies, treatment modalities and patient outcomes (e.g. survival, recurrence), thereby contributing to the better understanding of these rare cancers.
Conditions
Conditions (8)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Appendiceal Mucinous Neoplasms | Appendix Mucinous Neoplasm | ALIAS | 0.90 |
| Desmoplastic Small Round Cell Tumor | Desmoplastic Small Round Cell Tumor | ONTOLOGY_EXACT | 0.90 |
| Diffuse Peritoneal Leiomyomatosis | Disseminated Peritoneal Leiomyomatosis | ALIAS | 0.90 |
| Peritoneal Mesothelioma | Peritoneal Mesothelial Neoplasm | ALIAS | 0.90 |
| Primary Peritoneal Serous Carcinoma | — | UNRESOLVED | — |
| Psammocarcinoma | Psammocarcinoma | ONTOLOGY_EXACT | 0.98 |
| Pseudomyxoma Peritonei | Pseudomyxoma Peritonei | ONTOLOGY_EXACT |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Non interventional | Other | — | UNRESOLVED |
Design
Arms and outcomes
Arms (7)
- label
- pseudomyxoma peritonei
- description
- Data from pseudomyxoma peritonei cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
- interventionNames
- Other: Non interventional
- label
- peritoneal mesothelioma
- description
- Data from peritoneal mesothelioma cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
- interventionNames
- Other: Non interventional
- label
- desmoplastic small round cell tumor
- description
- Data from desmoplastic small round cell tumor cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
Eligibility
Eligibility (as posted)
- Sex
- All
Show eligibility criteria text
Inclusion Criteria: * Patients are eligible if they have a histologically proven rare peritoneal surface malignancy. Exclusion Criteria: * Histological diagnostic of peritoneal surface malignancy not confirmed * Expected clinical follow up data not available
References
Publications (1)
- DERIVEDVilleneuve L, Passot G, Glehen O, Isaac S, Bibeau F, Rousset P, Gilly FN; RENAPE Network. The RENAPE observational registry: rationale and framework of the rare peritoneal tumors French patient registry. Orphanet J Rare Dis. 2017 Feb 17;12(1):37. doi: 10.1186/s13023-017-0571-y. PMID 28212684