The Good Patient Study

Adolescents with cancer weigh multiple influences in medical decision-making, including their own best interest, the perceived wishes of family members, and the interpreted preferences of the health care team. Parents of children with cancer often describe themselves as trying to be a good parent in making decisions in the child's best interest. Adolescents with cancer often describe themselves as trying to be a good patient and good child in making decisions in accord with how they believe a good patient and good child would decide. Among the challenges of caring for adolescents is the reality that the formative relational influences in adolescents' decision-making are both complex and unique due to adolescent patients' social networks and relational roles. Delineating adolescents' definitions of being a good patient, a good child, a good sibling, and a good friend may enable the care team to better understand the formative decisional influences relevant to adolescents with cancer. Expanding knowledge about the decision making constructs relevant to adolescents with cancer and recognizing the role of these social constructs in medical interactions has the potential for development of a comprehensive care model that methodically evaluates the self-assessed decision making influences and needs of adolescents at various stages in oncology care. This qualitative construct-defining study represents an initial step in the development of enhanced interventions for improved psychosocial support in this vulnerable population.

Sex

All

Minimum age

12 Years

Maximum age

19 Years

Inclusion Criteria:

* Participants must be between 12 and 19 years of age at the time of enrollment.
* Participants must have primary care team approval to participate.
* Participants must be English-speaking.
* Participants must carry an oncologic diagnosis.
* Participants must be within four months of initial oncologic diagnosis or within four months of relapse/recurrent disease.

Exclusion Criteria:

* This study lacks any exclusion related to pregnancy (an Institutional Review Board requirement for enrollment of females who are capable of becoming pregnant), lactation or plans to become pregnant and lacks any exclusion of males fathering children while on study.
* Patients who, in the opinion of their physician, are not capable mentally or verbally of participating in the interview, will be excluded from the study.