Clinical trial · Interventional
Interdisciplinary Pituitary Disorders Centre of Excellence: Assessment of Patient Education Tools
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The purpose of this research study is to determine the utility of educational materials designed to inform patients of their pituitary condition, in an effort to assist the patients, families, and staff deal with pituitary tumours and related conditions in the best way possible. We have developed a website, informational videos, and a brochure for pituitary tumour patients and their families. The primary outcome measures will be 1) the level of knowledge that patients have of their condition before and after reviewing the materials provided; and 2) ease of use and user satisfaction of the materials. We hypothesize that our informative multimedia educational package will not only improve the health literacy and self-efficacy of patients and their families, but will also improve quality of care.
Conditions
Conditions (5)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| ACTH-Secreting Pituitary Adenoma | Corticotroph Pituitary Neuroendocrine Tumor | ALIAS | 0.90 |
| Gigantism | — | UNRESOLVED | — |
| Growth Hormone-Secreting Pituitary Adenoma | — | UNRESOLVED | — |
| Pituitary Neoplasms | Pituitary Gland Neoplasm | ALIAS | 0.90 |
| Prolactinoma | Lactotroph Pituitary Neuroendocrine Tumor | ALIAS | 0.90 |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Educational Intervention | Other | — | UNRESOLVED |
Design
Arms and outcomes
Arms (2)
- type
- EXPERIMENTAL
- label
- Educational Intervention
- description
- Educational Intervention - Access to educational materials provided (i.e. website, videos, brochure)
- interventionNames
- Other: Educational Intervention
- type
- NO_INTERVENTION
- label
- No Intervention/Use of Own Resources
- description
- No educational materials are provided to participants, but they can use their own resources
Primary outcomes (1)
- measure
- The level of knowledge that patients have of their condition before and after reviewing the materials provided, and ease of use of educational materials and user satisfaction
- timeFrame
- 1-2 yrs
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * age equal to or greater than 18 years; * capable of providing consent to participate on their own behalf; * diagnosed with a pituitary disorder OR have a history of pituitary disorder AND a current/former patient at St. Michael's Hospital, OR be a caretaker of someone with a pituitary disorder; * adequate written/verbal English skills. Exclusion Criteria: * Younger than 18 years; * Unable to provide consent; * Unable to communicate in written/verbal English, as all of the surveys and interviews are administered in English
References
Publications (3)
- BACKGROUNDAndrulis DP, Brach C. Integrating literacy, culture, and language to improve health care quality for diverse populations. Am J Health Behav. 2007 Sep-Oct;31 Suppl 1(Suppl 1):S122-33. doi: 10.5555/ajhb.2007.31.supp.S122. PMID 17931131
- BACKGROUNDKan P, Cusimano M. Validation of a quality-of-life questionnaire for patients with pituitary adenoma. Can J Neurol Sci. 2006 Feb;33(1):80-5. doi: 10.1017/s0317167100004741. PMID 16583727
- BACKGROUNDGoguen, J. (2007). Perioperative management of the pituitary patients. Endocrinology Rounds, 7(9): 1-6. Retrieved February 2, 2011 from http://www.endocrinologyrounds.ca