Clinical trial · Interventional
Study to Education Childhood Cancer Survivors About Survivorship Care
Childhood Cancer Survivor Program to Empower Action in Care
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The proposed study is part of a career development award. The first two phases of research involve collaborating with adult survivors of childhood cancer representing both sexes and three ethnic/racial groups (African American, Hispanic, and White). THe collaboration will focus upon developing educational material that is helpful in teaching survivors about health risks related to cancer treatments and about survivorship care. The third phase is a randomized controlled trial that will randomly (like a flip of coin)place survivors into one of two groups. One group will meet in -person with a group leader three times, once each week over three weeks. The other group will receive an information packet that contains websites, books, and resources similar to content provided in-person within a group format to the other group. The goal is to help adult survivors get involved in specialized healthcare so they can remain healthy. This involves getting a copy of their medical record to understand what treatments they received and working with health providers to get an individualized survivorship care plan.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Childhood Cancer | Childhood Malignant Neoplasm | ALIAS | 0.90 |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Education and empowerment | Behavioral | — | UNRESOLVED |
Design
Arms and outcomes
Arms (2)
- type
- EXPERIMENTAL
- label
- Education and empowerment program
- description
- Three group sessions delivered once per week over three weeks. Education on late effects of treatment, survivorship care, how to request medical records, and role playing on how to talk to a provider about childhood cancer health risks
- interventionNames
- Behavioral: Education and empowerment
- type
- PLACEBO_COMPARATOR
- label
- self-guided empowerment and education
- description
- participants have information packet but receive no individualized support or assistance
- interventionNames
- Behavioral: Education and empowerment
Primary outcomes (1)
- measure
- scheduling a survivorship visit
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * Diagnosed with any childhood cancer excluding CNS prior to age of 18 years * Completed treatment at least 5 years ago * Currently cancer free and 18 years or older * Self-identifies as African American, Hispanic/Latino, or White Exclusion Criteria: * Ever seen for risk-based follow-up care as an adult (18 or older)
References
Publications (0)
Data not yet available