Clinical trial · Observational
A Social Media Approach to Improve Genetic Risk Communication Phase I
NCT01645904CI-TRIAL-00038805unknownClinicalTrials.gov clinicaltrialsProvenance
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
The goal of this research study is to create an internet-based program designed to improve the communication of health and health history information among family members affected by Lynch syndrome.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Hereditary Diseases | — | UNRESOLVED | — |
Interventions
Interventions (4)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Audiotaped Focus Group | Behavioral | — | UNRESOLVED |
| Audiotaped Interview | Behavioral | — | UNRESOLVED |
| Demographic Questionnaire | Behavioral | — | UNRESOLVED |
| WAMMI Inventory | Behavioral | — | UNRESOLVED |
Design
Arms and outcomes
Arms (3)
- label
- Group 1
- description
- Patients participate in audiotaped focus group regarding web-based program, and fill out demographics questionnaire.
- interventionNames
- Behavioral: Audiotaped Focus Group
- Behavioral: Demographic Questionnaire
- label
- Group 2
- description
- Patients come to Behavioral Research and Treatment Center (BRTC) at MD Anderson to use initial version of My Family Garden website. Completion of Website Analysis and MeasureMent Inventory (WAMMI), and demographics questionnaires.
- interventionNames
- Behavioral: Demographic Questionnaire
- Behavioral: Audiotaped Interview
- Behavioral: WAMMI Inventory
- label
- Group 3
- description
- Patients use final version of My Family Garden website, and are interviewed which will be audiotaped. Completion of Website Analysis and MeasureMent Inventory (WAMMI), questionnaire and demographics questionnaire.
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: 1. At least 18 years of age 2. Able to read and speak english 3. Completion of genetic counseling and testing for a Lynch syndrome mutation 4. Persons with positive (i.e., carrier of Lynch syndrome MMR mutation) as well as indeterminate test results Exclusion Criteria: 1\) None
References
Publications (0)
Data not yet available
No reference posted for this study.