Clinical trial · Interventional
Burden of Cancer in Children: A Pilot Study to Investigate the Impact and Content of Video Illness Narratives
- Source
- ClinicalTrials.gov
- Retrieved
- Sep 8, 2026
- Layer
- normalized (units and labels harmonized; values unchanged)
- Run
- ING-CLINICALTRIALS-20260908-000001
Summary
Brief summary (as posted)
In order to gain a greater understanding of the full experience of children with life-threatening illness, this study will provide video cameras to ten to fifteen 10-18 years olds in active treatment for cancer, and instruct them to make video illness narratives over the course of 1-3 months. The narratives will be studied as an intervention; each of the participants will be administered a measure of physical symptoms (the Memorial Symptom Assessment scale 10-18) and a measure of self-esteem (the Rosenberg Self-Esteem Scale). The video narratives will also be analyzed for content by theme in order to understand the participants' experiences in their own words. Our hypothesis is that these narratives will provide insight into the lives of children with cancer, increase their self-esteem, and decrease symptom distress, and improve communication between patients and their doctors.
Conditions
Conditions (1)
Free-text conditions as registered, with the CancerIndex entity they were reconciled to and the match type.
| Condition (as posted) | Mapped entity | Match | Confidence |
|---|---|---|---|
| Cancer | Malignant Neoplasm | ALIAS | 0.90 |
Interventions
Interventions (1)
| Intervention | Type | Mapped drug | Match |
|---|---|---|---|
| Video Illness Narrative | Behavioral | — | UNRESOLVED |
Design
Arms and outcomes
Arms (1)
- type
- EXPERIMENTAL
- label
- Video Illness Narrative
- description
- single arm pilot study
- interventionNames
- Behavioral: Video Illness Narrative
Primary outcomes (1)
- measure
- Memorial Symptom Assessment Scale
- timeFrame
- 3 months
Secondary outcomes (1)
- measure
- Rosenberg Self Esteem Scale
- timeFrame
- 3 mopnths
Eligibility
Eligibility (as posted)
- Sex
- All
- Minimum age
- 10 Years
- Maximum age
- 18 Years
Show eligibility criteria text
Inclusion Criteria: * Diagnosed with cancer * Age 10-18 * In active treatment for cancer * Followed at the Strong Memorial Hospital/Golisano Children's Hospital Exclusion Criteria: * Non-English Speaker * Cognitively impaired so as to make data collection difficult
References
Publications (0)
Data not yet available